Nova Scotia's First Family Demonstration Project

I'm not sure why I have put off posting about this for so long. It definitely wasn't intentional - perhaps just a by-product of how busy my life seems to have become between going back to practice and what I am about to share.

Show of hands, please ... how many of you remember the NDP government's Roadmap for transforming Nova Scotia's Services for Persons with Disabilities Program (as it was then known)? Sure you do, remember the election campaign when all three parties endorsed the Roadmap and promised to implement it?

Now before you say anything, I must admit that I, too, was very cynical had my doubts - after all, how many times have the names of the Programs been changed? And how many times has government commissioned reports, conducted studies and, above all else, promised to change things ... all with no real or meaningful results?

So it was with great surprise (and maybe a little trepidation) that two other families and mine accepted the Department's offer last summer to turn our Transition House Project* into one of the long-awaited pilot projects for the Roadmap.

It took almost nine months to get here but I am pleased to say that my oldest daughter is one of the participants in the Province's first Family Demonstration Projects.

She has two roommates - not individuals imposed upon her (or she upon them), but two young adults that that she has grown up with and who share similar interests. Two good friends.

I must say that they have a VERY nice home. Trust me when I tell you that most of us would have killed to have our very first place out on own as nice as theirs.

But most important of all, our young adult children have the funding required to engage the support people ("house buddies" as we call them) needed so they can successfully live in their own home in the community.

Let's be clear here. This is most definitely not just enough group or small options home in disguise - we, the families (in our particular situation) decide what is needed to ensure that this will be successful for our young adult children. We, the families, are calling the shots - not the government or some residential service provider.

However, as usual, the devil is always in the details. In that vein I have some bad news and some good news for you.

The bad news is that the process, itself, of getting from the idea dream to reality was long and more than a little painful, for both sides. The good news is now that two different groups of families have successfully negotiated with the government and have committed to being in the Family Demonstration Project and one group is successfully up and running, the process for you and your family should be much, much smoother.

What's this all mean, you ask?

To put it simply ... here it is. The time has finally come. What is your dream for the ideal living situation for yourself or your family member? The time is here, people. It can and is, in fact, being done.

Full disclosure - it's a lot of work for the families to take on, there is no denying that. The Department tells us that Third Party Administrator Funding** (meaning that a third party would actually be responsible for handling the all the day-to-day tasks in making sure the financial end of things runs smoothly) won't be available for another two or three years. That leaves us, the families, to take on all aspects of managing and administrating the home, at least for the time being.

But trust me when I say that this is huge - huge for my daughter, for her roommates and for my and their families. But, most important of all, this has the potential to be huge for all persons with intellectual disabilities and their families in this Province.

Break out the band. Pop the champagne corks. We already have.

* Most definitely a story for another day.

** The Roadmap calls for participants or their families (as the case may be) to have the option of either managing the funding themselves or having a third party (I believe the plan is to redefine the roles of the current residential service providers to include acting as Third Party Funding Administrators) manage the funding. [See pp. iv, 23, 25 and 44 at the link.]

A New Day Dawns

HAPPY BELATED CANADA DAY!!

I hope you and yours enjoyed a great one.

As for me and mine, I am happy to report that Yours Truly managed to not just celebrate our great country and spend some bonding time with my youngest daughter, but I also dotted all my i's and crossed all my t's ... that's right - I finished up the last of the paperwork necessary to finalize the change back to practicing status.

So please welcome my firm, MMC Legal Services, into the

big bad world. And spread the word, this particular firm only serves the disability community.

'Autism Night Before Christmas'

From 5 Minutes for Special Needs (a spot I make it to far too rarely lately), something I think many of my readers can relate to, whether or not their child is diagnosed with autism.

Twas the Night Before Christmas

And all through the house

The creatures were stirring

Yes, even the mouse

We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract

The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head

Did I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?

Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.

“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack

Now go read the rest of it. Please.

And  a Very Merry Christmas to you all.

Who Knew?

Apparently we have our own day.

Persons with disabilities make up an estimated 15 per cent of the world’s population. Almost one-fifth of the estimated global total of persons living with disabilities, or between 110-190 million, encounter significant difficulties. Furthermore, a quarter of the global population is directly affected by disability, as care-givers or family members. Persons with disabilities encounter many disadvantages in their societies and are often subjected to stigma and discrimination. They remain largely marginalized, disproportionately poorer, frequently unemployed and have higher rates of mortality.

.  .  .  .

The Convention on the Rights of Persons with Disabilities, which is both a human rights treaty and a development tool, provides an opportunity to strengthen developmental policies related to the implementation of internationally agreed development goals, such as the Millennium Development Goals (MDGs), thereby contributing to the realization of a “society for all” in the twenty-first century.

.  .  .  .

Sub-themes for commemorating the International Day of persons with disabilities in 2011 This year, the UN Department of Economic and Social Affairs requested the input of its partners and the general public for suggestions on a theme for the International Day of Persons with Disabilities 2011. Many responses were received from both, the UN system and civil society.

Now, for the first time, the Day will be commemorated under a general theme with supporting sub-themes to draw attention to keyout own day.

I'm glad to see not everyone missed it anyway.


I AM... I Love from L'Arche Canada-Communications on Vimeo.


Yes, it's not much, I know.
But I thought the least I could do was acknowledge it.

... And To All a Good Night

My how time flies ... it seems like Christmas does a better job of sneaking up on me with each passing year!

I must admit that this is my favourite holiday though - the cold and snow outside (although no snow yet this year) and the warmth and love of family and friends inside. 

There is nothing I enjoy better, nothing which gives me more peace than sitting in a darkened room, illuminated only by a Christmas tree and admiring its beauty.  It is a time to muse, review, reflect, renew and rejuvenate.

For no matter what may have transpired this past year (through both the highs and the lows), there is the sure knowledge that hope springs anew for the future. And although there is assuredly much, much work yet to be done in the future, there are also many victories to be celebrated in the past.

So to all my readers, both old and new ... a Very Merry Christmas to you and you family.  And to All  a Good Night.