Fight for the things that you care about but do it in a way that will lead others to join you.
~ Ruth Bader Ginsburg, US Supreme Court

Showing posts with label Access to Services. Show all posts
Showing posts with label Access to Services. Show all posts

Tuesday, June 20, 2023

The Continuing Saga of Human Rights in Nova Scotia

In my last post, we discussed the (hopefully) upcoming changes to the Disability Support Program following the ruling of the NS Court of Appeal in the human rights case involving three residents of the NS Hospital.

I gave some of the backstory and talked about the interim agreement reached between the Disability Rights Coalition and the Province.

Believe me, after all these years, I'm as cynical as anyone else when it comes to wholesale changes in how (and if) Nova Scotia delivers services to individuals with disabilities. 

But the one change (and if this doesn't make a difference, I can't see how anything else ever will) in this case is a decision with the force of law behind it.

The NS Court of Appeal agreed with us and the Supreme Court of Canada denied the Province's leave to appeal so .... there's really nowhere else for them to go.

Our family attended one of the in-person sessions held across the Province and it was ... interesting. Kentville was suppose to be the third meeting but ended up being the first and the Province readily admitted that it wasn't prepared for the turnout. 

A few interesting take-aways from the meeting. 

  • The Province has 5 years to implement all the changes set out in the Agreement.
  • They will need to hire 100 more social workers to make this work.
  • The plan is to hire 25 social workers every year.*
  • The waiting list that always 'wasn't** will no longer exist.
  • Instead your worker will come to you to ask where and how you want to live.
A very astute person in the audience asked what would happen if suitable housing wasn't available (which seems to be the case for a lot of people in the Province, with disabilities or not). The response was something to the effect that if you couldn't find what you were looking for, you would need to wait until you could. I assume that meant you would need to 'settle for something else'  (of your choice) in the interim but you know what they say about the danger of assuming. Although I suppose we can't legitimately ask the Province at this point to figure that (or a lot of other things) out right away.

The sessions are over now so I hope at least some of you attended.

BUT the reason I started this post was ... [drum roll please] ... I actually read the plain language executive summary of the independent expert report today. I found it a little hard to navigate at first - how the heck do I find p. 2 - but it turns out the squiggly little up and down arrows at the bottom of the page did the trick. It's very short and I make no comment on its sweetness but I would suggest we all at least start there.

The full report (which I admit I have not yet read) can be found here.

Very well. Carry on.


*Meaning that it will take 4 years just to get the staff they need.

** I assume most of us have found that depending on who you speak with (and when), there may or may not be a waiting list for services.

Tuesday, June 4, 2019

All Hail the New Leader: Disability Support Program

I stumbled across this by accident on the Disability Support Program website. Very, very interesting. Of course, whether it will actually mean anything for the disability community's point of view remains to be seen.

I can tell you, however, that I recently met with Maria Medioli, who has taken over Joe Rudderham's position as Executive Director of the Disability Support Program. And I must say that I was positively impressed - which is not an easy feat with this long-term cynical parent/ disability lawyer.

You might remember that it was Ms. Mediolia that recently commented to the effect that parents and caregivers should contact staff at the DCS, who will "will bend over backwards to support families as best they can."

I must admit that when I first read that, I rolled my eyes, shook my head and wondered why the more things change, the more they stay the same. And that, as they say, was that.

Or at least it was until I actually spoke with Ms. Medioli in person (as part of a small group of families). The conversation lasted close to two hours and she seemed very open and honest in her answers/comments. To say it was a pleasant surprise would be a very large understatement.

So, let's put it this way, Mr. Rudderham and I never really hit it off from the first day we met but I got a very different, very positive feeling from Ms. Medioli.*

Never fear, though; I remain somewhat cynical. After all, does anyone remember the story of the former Student Services Coordinator for the Annapolis Valley Regional School Board who sounded like God's gift to parents whenever she spoke in public but was pretty much the polar opposite when a family actually had to advocate on behalf of their child?

Whether some people start from the right place but quickly get sucked up and corrupted by the system or  are simply very good at "playing the game" (generally to the detriment of individuals with special needs and their family members), I take very little at face value.

But I will give Ms. Medioli a chance to show that she not only talks the talk, but actually walks the walk. Maybe you should, too.

* Ironically, some might say, at the end of our meeting, Ms. Medioli commented that it had went much better than she feared though it would. Skeptic meet Skeptic.


Wednesday, April 10, 2019

NS Family Fights for Future of Son with Disabilities

This video is making its way around FB with good reason.

It is heartbreaking and a true rendition of what is happening in Nova Scotia right now, particularly to those with more severe challenges, such as Brendon.



Sunday, May 28, 2017

Standing on the Shoulders of Giants ...

Trolling through FaceBook today (because I really have nothing else to do, right?!), I was noticing some of my American friends posting their thoughts on the debt they owe to those who came before them and made the ultimate sacrifice.

Which, I honour and respect that, it's just that we tend to save those thoughts for a different day ...

However, it did get me thinking about how much we, as parents, owe to those who came before us. How both we and our children stand on their shoulders.

Pretty much any advance made in the world of disabilities, whether we look to the US, across Canada or right here in Nova Scotia came about through the sheer work, determination, dedication and (never to be forgotten) passion of those parents.

Think about it ... in the US, we need only to look at IDEA; in Canada we could look at the Convention on the Rights of Persons with Disabilities and elsewhere; here in Nova Scotia, I need only look almost literally across the street from my home to see the Flowercart. I can only presume that other sheltered workshops throughout the Province came about through a similar process. Please understand that I'm not suggesting that any of these concepts (particularly sheltered workshops) couldn't be improved on, just that, at the time, they were a giant step forward for the disability community.

It's true, I have had (and shared) such thoughts on many occasions, but what makes this time different perhaps are the four parent-inspired and created innovations I am aware of in my own back yard - both CAPRE and the Alexander Society for Inclusive Arts have been around for many, many years; Kaleidoscope is relatively new; and Rowan's Room Respite and Developmental Centre is pretty much brand new. I am proud to personally know all the families that started these endeavors and of the fact that all four are happening right here, in my Annapolis Valley.

If I may, I am particularly proud (at the moment) of Elizabeth Mason Squires for taking on this huge venture:
The Skills to Navigate
It’s not about fitting in. It’s about giving them the skills and tools to better navigate a world that doesn’t always understand or accept differences. It’s about being who they are but giving them the power to control their understanding of unfamiliar situations and differences, as well as the ability to master their own environment.
Be it with respect to education, day programming, leisure, housing or any other of the myriad of issues facing our communities, the facts remain the same - it so often takes highly-motivated parents and families desperate to find something useful and workable for their family members to create the next bridge forward, to the benefit of so many.

May we never forget that we stand on the shoulders of those who came before us. But equally important, may we never forget our corresponding duty to make life better for future generations.



And while we're doing that, please don't forget to check out the above organizations.

Wednesday, November 16, 2016

Rate Your Government

Yet another survey, this one from CHAG (Community Homes Action Group), formed a few years ago to gather information and provide help for good housing options for people with developmental disabilities.
In June 2013, the Government of Nova Scotia accepted the work of a joint Community-Government Advisory Committee on Transforming the Services to Persons with Disabilities Program (called the Roadmap). Before that, people with developmental disabilities may find it hard to do many things that most people can do easily. These disabilities can make it hard to learn, speak, tell others what you want, work with others and take care of daily needs. Developmental disabilities are present at birth or develop before 18 years of age. People can have more than one disability. 
CHAG wants to know the opinions of people on the status of services for people with development disabilities three years into the Roadmap. Please help us by filling out a short survey.
We are sending the survey to many people to learn Nova Scotians’ thoughts about the Roadmap. CHAG will create a “report card” that we will share with others. We have two goals: 
1. To make people aware of the critical issues facing people with developmental disabilities and their families; and
2. To encourage government to take action on these issues. 
Do you think the Roadmap has helped or not helped people living with developmental disabilities, their loved ones and service providers? Please tell us what you think. 
You do not have to give your name or tell us about yourself. No one will know that you filled-in this survey. Nothing about who you are will be kept with your answers. Please answer as many of the seven survey questions as you can. You can stop at any time. Clicking the link says that you know your answers will be kept private and that you agree to try the survey.
Please complete this survey by December 1, 2016. Make your opinion count!
As a community, I firmly believe that we really need to hold the government's feet to the fire on the issue of the Roadmap.

After all, if not us, then who? Please take the survey.

Monday, November 30, 2015

Petition to Implement a National Assistance Program for Canadians with Disabilities

I don't recall ever asking my readers to sign a petition and, if I have, it would be very rare indeed. But there is a very important Petition directed to our Federal government up at Change.Org and I
would ask you to please check it out and sign it.

It's well part time that Canada met its moral and legal obligations to provide all of its citizens with disabilities with the assistance they need to access life in the community. Mobility aids are just one small, albeit very important, type of assistance the federal and provincial governments should be helping with.

So, please, it will take you all of two minutes - sign the Petition.

Monday, October 19, 2015

CanuckKabuk Law

As I've noted before, although all kinds of links to all kinds of interesting information be found in the  sidebar, I have never had an official  blogroll at A Primer on Special Needs and the Law - the main reason being that there are very few Canadian legal-disability blogs out there, or at least very few that I'm aware of.

But today I came across "Kabuk Law" (no, I have absolutely no clue where that name came from although I can tell you that they bill themselves as "the first interactive platform for seeking legal advice in North America, enabling consumers to source desired providers and book appointments online" and there is an interesting little story behind how the site came to be) that appears worthy of sharing.

This is the link to their blog, where some interesting articles in their own right can be found. This will take you to their main page.

So what's it all about, you ask?

Basically it's a CANADIAN site that attempts to connect the public (meaning people like you. And you. And yes, you too) with lawyers. Pardon my excitement, but finding truly Canadian sites like this is indeed rare.

So check them out. Even if you're not in need of legal services at the moment, it's never hurts to be a Boy Girl Scout and be prepared. Check out their blog, too; as I said, there looks to be some very interesting stuff there, including a link to a survey asking people about their experiences looking for legal advice or (gasp) even an actual lawyer.

It would appear that they actually want to make getting legal advice easier, right here in Canada. Who would have thunk it, eh?

Tuesday, July 21, 2015

Nova Scotia's First Family Demonstration Project

I'm not sure why I have put off posting about this for so long. It definitely wasn't intentional - perhaps just a by-product of how busy my life seems to have become between going back to practice and what I am about to share.

Show of hands, please ... how many of you remember the NDP government's Roadmap for transforming Nova Scotia's Services for Persons with Disabilities Program (as it was then known)? Sure you do, remember the election campaign when all three parties endorsed the Roadmap and promised to implement it?

Now before you say anything, I must admit that I, too, was very cynical had my doubts - after all, how many times have the names of the Programs been changed? And how many times has government commissioned reports, conducted studies and, above all else, promised to change things ... all with no real or meaningful results?

So it was with great surprise (and maybe a little trepidation) that two other families and mine accepted the Department's offer last summer to turn our Transition House Project* into one of the long-awaited pilot projects for the Roadmap.

It took almost nine months to get here but I am pleased to say that my oldest daughter is one of the participants in the Province's first Family Demonstration Projects.

She has two roommates - not individuals imposed upon her (or she upon them), but two young adults that that she has grown up with and who share similar interests. Two good friends.

I must say that they have a VERY nice home. Trust me when I tell you that most of us would have killed to have our very first place out on own as nice as theirs.

But most important of all, our young adult children have the funding required to engage the support people ("house buddies" as we call them) needed so they can successfully live in their own home in the community.

Let's be clear here. This is most definitely not just enough group or small options home in disguise - we, the families (in our particular situation) decide what is needed to ensure that this will be successful for our young adult children. We, the families, are calling the shots - not the government or some residential service provider.

However, as usual, the devil is always in the details. In that vein I have some bad news and some good news for you.

The bad news is that the process, itself, of getting from the idea dream to reality was long and more than a little painful, for both sides. The good news is now that two different groups of families have successfully negotiated with the government and have committed to being in the Family Demonstration Project and one group is successfully up and running, the process for you and your family should be much, much smoother.

What's this all mean, you ask?

To put it simply ... here it is. The time has finally come. What is your dream for the ideal living situation for yourself or your family member? The time is here, people. It can and is, in fact, being done.

Full disclosure - it's a lot of work for the families to take on, there is no denying that. The Department tells us that Third Party Administrator Funding** (meaning that a third party would actually be responsible for handling the all the day-to-day tasks in making sure the financial end of things runs smoothly) won't be available for another two or three years. That leaves us, the families, to take on all aspects of managing and administrating the home, at least for the time being.

But trust me when I say that this is huge - huge for my daughter, for her roommates and for my and their families. But, most important of all, this has the potential to be huge for all persons with intellectual disabilities and their families in this Province.

Break out the band. Pop the champagne corks. We already have.

* Most definitely a story for another day.

** The Roadmap calls for participants or their families (as the case may be) to have the option of either managing the funding themselves or having a third party (I believe the plan is to redefine the roles of the current residential service providers to include acting as Third Party Funding Administrators) manage the funding. [See pp. iv, 23, 25 and 44 at the link.]

Friday, April 25, 2014

Very, Very Interesting

Dear Parents,

HRM Community Recreation & Culture (CR&C) staff would like to invite you to attend a Parent/Caregiver/ First Voice engagement session regarding recreation, social and cultural services, for people with disabilities. 
CR&C staff have started to develop a community recreation service delivery model for people with disabilities that is community oriented, provides choice, is person focussed, responsive, safe and accessible.

We are creating a model by researching what other Canadian municipalities are providing, working with Dalhousie University faculty on a literature review piece, studying legislation and using the related philosophies on the SPD Transformation Plan and Roadmap. The additional development phases include Recreation/Social Service Providers Engagement, nurturing partnerships with post-secondary schools, engaging Therapeutic Recreation professionals and caregiver/first voice engagement. 
This session will be the second of three engagement sessions which include:, Recreation/Social Service Providers; Parents/Caregivers/First Voice; and lastly, Recreation/ Therapeutic Recreation/ Child & Youth Professionals.

We would like to bring parents of children who have special needs to the table to share our research, share our proposed model, do an asset mapping exercise, insure we are filling service gaps in the community, not duplicating or competing with already existing programs and finally to see where we can build partnerships.

We hope that you will join and share your feedback. Here is the session information.

Caregiver/First Voice Engagement Session
Wednesday May 7, 2014
7:00 – 9:00 pm
St. Andrew’s Recreation Centre
3380 Barnstead Lane (off of Bayers Rd.)
Light refreshments will be served.

Please RSVP to stapled@halifax.ca by May 2, 2014, 4:00 pm. Please let us know if you have any dietary restrictions and/or anything you need on site in order to fully participate.

Wednesday, April 2, 2014

Whazzup With That Roadmap, Anyhow?

Everybody needs a hero, right? I think I may have found (one) of mine.
This guy right here. He impresses me.

Why, you ask?

Because, in the midst of all his other work, he has written repeatedly on some very important issues for the disability community. And he's not showing any signs of letting it go. You have to like that.


And that raises a very important question - what is up with the Department of Community Services Transition Roadmap (aka The Roadmap)?
The report, written by a joint group of civil servants and representatives of community organizations, calls for the phasing out of large institutions, a more individualized approach in terms of care and funding, and altogether a new emphasis on changing services to better accommodate people with disabilities.
The short answer ... Hell if I know.

The sad reality is that the best information I have comes from Robert's article. Much like Sgt. Schultz, I see nothing, I hear nothing, I know nothing.

But fear not, for others know much, much more than I. Let's see what Robert has to say:
At the time the department, right in the introduction to the report committed to "implementing these recommendations over a five-year time frame, with major action steps for each of the ten recommendations being plotted over 2013-14 through 2017-18."
.  .  .
That was September of last year.

Now it appears things are moving ahead, but not at the pace that the report suggested.

Of the thirty or so action steps scheduled for the previous fiscal year 2013-14, not one has been completed. But work has started on all of them, Elizabeth MacDonald, departmental spokesperson, tells the Halifax Media Co-op.

Stakeholder provincial advisory groups, which according to the report should have been in place by now, have not yet been announced.
 Guess who else apparently knows something? Wendy Lill.
Wendy Lill, playwright and former Member of Parliament, has been advocating on behalf of people with intellectual disabilities for a very long time. She was co-chair of the team that helped shape the transition roadmap.

Just two weeks ago she attended a roadmap progress update for stakeholders organized by Community Services. That was also the first update provided by the department since the roadmap was launched seven months ago.

"After that meeting I am hopeful that there is some real movement happening and that there is good faith there," Lill tells the Halifax Media Co-op.
Apparently, we are to hear more about a series of pilot projects "in the spring" [wait, isn't that, like, now?] and the membership of advisory groups will be revealed some time after March 31st [so, again, that would be, like, any time now, right?]. But not just that - "a training program" for "care coordinators and service delivery people" is on the way. Thank God for that. Just, please, don't ask me what it means - I'm not entirely sure.

But, hey, know what I do (think I) know? Politics. I can talk politics. Let's try that.

The Roadmap was originally brought forward by the NDP government. The very same NDP government that a lot of people, myself included, were pretty frustrated with. We were frustrated because we expected CHANGE with our first NDP government, real CHANGE. And we didn't get it, or, at least not as fast as we wanted. It was that very frustration that caused played a large part in the NDP's defeat in the last election.

So now we have a new government. A Liberal government. And I have to wonder if people will be as hard on them, expect as much change as quickly from them, as they did our last government. Because, if so, I am pretty sure we will have another epic fail.

In the words of Wendy Lill:
"Things are dreadful now, [the Department is] spending a lot of money and they are getting very poor results," says Lill. "Strong arguments have been made that [the new way] can be sustainable, and they have leadership that is mounting that argument in a very strong way."
Yeah, they are. And how much (and how fast), if at all, that changes will be up me you and me. That's right, you. And you. And you. And me.

And that takes me back to why I am so grateful for Robert Devet's continued writing on these subjects, for his efforts to hold our government accountable for what was promised. But that you and you and you and I can do half as good of a job in that regard.

Wednesday, March 12, 2014

New Legislation for Persons with Disabilities ~ It's Time to Have Your Say

Listen up, people.

Personally, I believe that Nova Scotia could well be a tipping point at this moment when it comes to services for persons with disabilities. We could go one way (towards truly individualized funding and real community inclusion.) or we could just stick with the status quo.

Which would you prefer?

As the province looks at bringing forward new legislation the ipro bono student group at Dalhousie Law School has taken the initiative of reviewing legislation in other provinces and elsewhere regarding services for persons with disabilities, the

They're anxious to engage as many people as possible in their project. And since you have a vested interest in the outcome, your opinion matters.

Here is a short survey (honest, it really is short) that touches on a lot of important points, some of which will really make you stop and think.

Please take a few minutes to complete it. If you like, they will send you the results, which will be included in their final report.

One other request - please share this survey widely - this legislation will affect a large number of people who are not often consulted. Indeed, the number of responses is itself a part of the message.



Sunday, November 17, 2013

Case Study on Holding Government Accountable for its Promises?

Below is the text of an email I recently received through the Disability Coalition. Reading through it, it felt a little like I was reading a case study on how to actually hold a government accountable for its promises.

What say you? Would/could this kind of approach work in Nova Scotia with our new provincial government?

If so, perhaps it's time to get moving.

ACCESSIBILITY FOR ONTARIANS WITH DISABILITIES ACT ALLIANCE UPDATE UNITED FOR A BARRIER-FREE ONTARIO 

New Toronto Star Editorial Backs Our Call for the Ontario Government to Reveal Its Plans for Enforcing the Accessibility for Ontarians with Disabilities Act  

SUMMARY
On October 31, 2013, the Toronto Star ran a hard-hitting editorial, set out below. It calls on the Ontario Government to at last make public its plans for enforcing the Accessibility for Ontarians with Disabilities Act. It is a real boost to our non-partisan campaign to make Ontario fully accessible for all people with disabilities, when a major newspaper runs an editorial that backs our cause. 
Here, the Star backs the Freedom of Information application that AODA Alliance chair David Lepofsky filed on August 15, 2013 to unearth the Government's actions to date and plans for enforcing the disabilities act. This editorial has been widely circulated in cyber-space. It has been re-tweeted many times. 
After we set out this editorial, below, we give you links to several other newspaper editorials over the years that have backed the position of the AODA Alliance, or its pre-2005 predecessor coalition, the Ontarians with Disabilities Act Committee. 
There have now been 285 days since the AODA Alliance wrote the Ontario Government for information on the Government's plans to keep its election promise to effectively enforce the Accessibility for Ontarians with Disabilities Act. Read the AODA Alliance's unanswered January 22, 2013 letter to the Ontario Government, requesting the Ontario Government's plans for enforcing the Accessibility for Ontarians with Disabilities Act

Wednesday, October 16, 2013

Blog Action Day - Standing Up for Human Rights

HUMAN RIGHTS .... a BIG HUGE topic, but one that surely could not be more relevant to those in the disability community and their families.

Looking back at the topics we have discussed over the past six years on this blawg; be it education, transportation, recreation, employment, medical care or housing, bottom line, aren't we really talking about the same thing - about the right to equality, the right to have the same access to the same services and (even more importantly, the same opportunities) as everyone else?

Yes, there will always be those that have it worse than you and I, than mine and yours. Just think of what it must be like to live with a disability in a third world country or a country where you are, irrespective of your disability, of the *wrong* gender or race. Then again, come to think of it, you could be an Aboriginal child with a disability living right here in Canada. Think of how much worse your life could would be.

But that really isn't the point, is it?

Of course not - the point is that no matter where we live, no matter who we are, we are all entitled to the same basic human rights. Not because the government of the day happens to agree or because we live in relative wealth, but because of one simple, inescapable fact - male or female, old or young, no matter our race or gender identity or sexual orientation or any other difference, no matter where we happen to live on this earth ...

We.

Are.

All.

Human.

And yet, simply *having* these rights is obviously not enough. Like any other "right", such rights would be meaningless without a mechanism of enforcement.

And as I turn my mind to the legal world, to "the law", I can only sincerely and humbly thank those who had the grit, determination and drive to realize the obvious and fight to have those rights enshrined as part of our law. And, in Canada's case, not just as part of the law. but as part of the highest law of the land, our Constitution.

But, sadly, two steps forward and one step back seems to be the way of life in so many ways. For even though sec. 15 of the Canadian Charter of Rights and Freedoms guarantees that every individual is "equal before and under the law and has the right to the equal protection and equal benefit of the law without discrimination and, in particular, without discrimination based on race, national or ethnic origin, colour, religion, sex, age or mental or physical disability" and even though Canada is a signatory to both the Universal Declaration of Human Rights and the United Nations Convention on the Rights of Persons with Disabilities, we are still forced to stand up and fight for these rights over and over, right here in Canada.

So it is that I can only offer my eternal gratitude to those, both inside and outside the disability community, who have stood up to demand that these rights be, not just recognized, but given real meaning; to those who have stood up for the rights of our parents, our siblings, our children, our friends, ourselves.

But as I write this I realize that what concerns me, personally, most of all in this matter are those in the disability community who, for whatever reason, will not stand up and be counted, not stand up and be heard, not stand up and support others in their fight for equality. For it is only if we all stand together that any one of us can be truly successful.

And so I leave you to ponder the famous words of Martin Niemöller:
First they came for the Jews
and I did not speak out
because I was not a Jew.
Then they came for the Communists
and I did not speak out
because I was not a Communist.
Then they came for the trade unionists
and I did not speak out
because I was not a trade unionist.
Then they came for me
and there was no one left
to speak out for me.

Monday, May 27, 2013

The Pros and Cons Power of Guardianship

I've written extensively in the past about the various options open to parents to manage their legal relationship with their adult challenged children.

For some families, a power of attorney and personal directive might be the answer. For other families, it won't. For some families, guardianship will be the only sensible option.

I've also written on some of the reasons why guardianship can be such a useful tool in the right circumstances -  for everything from

  • being involved with the adult's medical care and having access to their medical records 
  • to managing their assets (finances)  
  • to the control it gives in dealing with third parties, such as various government departments and agencies on the adult's behalf.

Although all of the above obviously have great potential to be important in your adult child's life, today I would like to take a closer look at the last item listed above; namely, the control guardianship gives in dealing with third parties, such as various government agencies and departments.

Whether dealing with the Canada Revenue Agency around income tax or issues around the Disability Tax Credit, various financial institutions or financial planners as you manage your child's RDSP or Nova Scotia's own Department of Community Services (DCS) in regard to issues of "work placement" or "placement" of your adult child in a residential care facility, guardianship can be a very useful tool.

But guardianship can be particularly useful with regard to that latter item (dealing with DCS). Not only does having guardianship allow you to direct where your child lives and works, but it will allow you to be involved in ongoing care decisions with respect to such placements.

It's no secret that guardianship has, on more than one occasion, proven very valuable for parents who were initially refused access to information and records concerning their adult child who was living in a residential care facility. Both administrators and social workers often consider concerned parents to be nothing more than “busy bodies”.

However, once a guardianship order is obtained, such parents generally find that both  home administrators and social workers stop trying to do an end run around them. Sometimes, being granted access to information and records is enough. Other times, however, concerned parents with guardianship might decide to move their child to a different living situation where the child will be happier and their ongoing interest and involvement are appreciated and encouraged.

A very powerful tool, no?

And yet, the saga continues.

Saturday, May 25, 2013

A Voice in the Wilderness?

This homegrown video was created by a small group of parents with support from the Progress Centre for Early Intervention in an effort to raise awareness for the need for improved services for children with special needs.





Let's hope it's more than just a voice in the wilderness.

Sunday, April 7, 2013

He's Baaaaack...

UPDATE: The Assembly of First Nations' Response

I've written on more than one occasion about the discrimination faced by Jeremy Meawasige (and other First Nations' children) like him.

Let's say it altogether, shall we?

J-O-R-D-A-N-'S  P-R-I-N-C-I-P-L-E

Now that wasn't that so hard, was it?

For once, I am pleased to report good news. For now anyway. *
OTTAWA — The Federal Court has ordered Ottawa to reimburse a First Nations band for the cost of taking care of a severely disabled teenager living at home — a ruling that could have widespread implications for federal social services on reserves. 
“It sets an important precedent to ensure all First Nations children across Canada are given equal access to essential government services,” said Paul Champ, the lawyer for the boy’s mother. 
The case centres around 18-year-old Jeremy Meawasige, who has hydrocephalus, cerebral palsy, spinal curvature and autism, is self-abusive and can only communicate with his mother, Maurina Beadle.

You might recall that federal officials have been arguing (both in and out of court) that they were in complete compliance with Jordan's Principle and providing funding in line with provincial programs. But the court found that what they had refused to hadn't taken into account was "provincial provisions for special circumstances".

Of course, some of us might call that very proposition into question too - since when, exactly, has there been "provincial provisions for special circumstances", you ask?

Good question.

And up until the 2011 decision of the Nova Scotia Supreme Court in Boudreau, it appeared that the answer was that there were no "provincial provisions for special circumstances", at least not in Nova Scotia.
["As you know the Direct Family Support program bases its respite amount on $10 per hour. Unfortunately Services for Persons with Disabilities (SPD) staff have not been authorized to increase this hourly amount at this time. In regards to the possibility of increasing your monthly amount, in order that you can use the additional funding to pay extra per hour, SPD has not been authorized to allow any increases which result in payments exceeding $2200 per month. As Brian’s current respite allowance already exceeds $2200 per month no increase may be authorized at this time."]
However, Boudreau, as you will recall, not only settled the question of whether the Services for Persons with Disabilities program is authorized by legislation, it also made it clear that there is nothing voluntary about the SPD program  (once eligibility for services has been shown/accepted, a legal entitlement arises automatically) and, as with any other “assistance” under the Social Assistance Act, eligibility triggers not just a right to that assistance but one that is to be immediately provided.

Even better, the court in Boudreau found that, generally, the SPD Program falls under the ‘special needs assistance’ provisions in the Social Assistance Act and, in situations where the legislation does not stipulate a maximum amount for such assistance, the Department should be paying “reasonable” amounts sufficient to meet the need.

And so it was, with a stroke of Justice Rosinski's pen in the Boudreau decision, that the Province could no longer rely on the November, 2009 directive from the Director of the SPD program limiting the Direct Family Support program approval levels for respite funding to $2200 per month.

And that decision in Boudreau, you see, was exactly what Maurina Beadle and the Pictou Landing Band Council relied on in their successful judicial review application for Jeremy Meawasig.

Back to that good news I mentioned in the beginning of this post - the Federal Court ruling now obligates Ottawa to uphold Jordan’s principle ... in more than just principle, one might say.
“Jordan’s principle is not to be narrowly interpreted", Justice Leonard Mandamin warned.
And although Mr. Justice Mandamin didn't say exactly how much the federal government should be paying to the Pictou Landing band council, after noting that Jeremy's mother is often the only one who is able to understand and communicate with him and Jeremy's only other option would be institutionalization and separation from his mother and community, the court indicated that it should be a lot more than the $2,200 it is already paying. It is expected that this decision will give Jeremy's mother and the band council grounds to demand a full reimbursement.

There's more to this story, of course.

Go read the piece in the Chronicle Herald to see the reaction of Jeremy’s 23-year-old brother, Jonavan Meawasige, who has taken on much of Jeremy's home care over the past two years, while also trying to fish for a living and the expected implications for other First Nations children, including in a separate case on First Nations child welfare in front of the Canadian Human Rights Tribunal, where it is being argued that First Nations children have the right to welfare services on par with what provincial governments offer off-reserve children.

Well, imagine that. Now what do you suppose they will think of next?

* Hoping and praying this decision won't get appealed by the federal government. And that our provincial government will stop trying to do an end run around the Bourdreau decision, telling families that it has no absolutely no application to their particular case, when that is, at a minimum, very debatable.

Monday, March 18, 2013

Batter Up

That would be you and me, folks.

Just another reminder that a series of community meetings* start this week across the Province. A series of community meetings that persons with disabilities, their family members and their friends need to attend.

The meetings follow the government's release of the long awaited Continuing Care/Services for Persons with Disabilities discussion paper, "Putting People First - Working Together to Support Independence and Dignity".

Let's admit it. We're all pretty good at moaning and complaining calling the government out on the pathetic situation facing persons with disabilities in this Province, both in housing and otherwise. And rightfully so.

But the question in my mind is "Will we be just as committed to doing our part to find a solution?".

Criticism is easy; finding solutions is often much more difficult.

So here's your chance, read the discussion paper (which, honestly, doesn't tell really tell those who live this day in and day out anything we didn't already know but at least it acknowledges the problem and appears to want to move forward) and come out to a meeting in your area*.

Bring your spouse, your children, your friends. But, most importantly, bring your self.

As they say - you're either part of the problem or part of the solution. Which will you be?

* A meeting in Digby has now been added.
Thursday, April 4, 3013 ~ 4:00 - 6:00 pm
Annapolis Basin Conference Centre
761 Broadway Ave., Cornwallis Park
Cornwallis Room.

Monday, March 4, 2013

Putting People First?

I received an email from NSACL today, with the following information.

The Nova Scotia government has finally released the long awaited Continuing Care/Services for Persons with Disabilities discussion paper. It's entitled "Putting People First - Working Together to Support Independence and Dignity". 

A series of community meetings have been set up by Department of Community Services and parents and self-advocates are encouraged to attend. 

Not only does NSACL strongly encourage you to review the document and attend a local community meeting, but so do I. 

Please. As family members, if they can't make their voices heard on their own, it is up to us to do so for them. Whether that means attending and speaking on their behalf or attending with your family member, speaking yourself and encouraging them to say what they can, we can't miss this opportunity.

And if your family member is relatively high-functioning, you might just want to give the latter a try. I was amazed at how well my daughter did at one of the housing consultations earlier this year. Sitting at a table without me but where she fortuitously knew one other person, she was helped to put together what SHE needed to say and she did a great job. Not only was it incredibly empowering for her but it seemed to make a real impact on the room.

The Discussion Paper : "Putting People First - Working Together to Support Independence and Dignity"

Schedule of Community Meetings

Tuesday, February 19, 2013

How Time Flies Crawls

Does anyone recall back in 2008 when I mentioned that the United Way of Halifax was putting out the call for a 211 service in the province?
211 is personal telephone access to information about the full range of social services offered in a local community. It is especially valuable to seniors, newcomers and persons with disabilities trying to navigate the maze of services delivered by multiple levels of government and private providers.

Today residents in large cities like Toronto, Edmonton and Calgary, as well as smaller cities such as Windsor, Niagara Falls and Simcoe have access to 211, 24-7. Callers always talk to people and never a machine. Three more 211 initiatives will launch in 2008 in Ottawa, Thunder Bay and Quebec City. The premier of British Columbia has recently announced the commitment to the first provincewide 211 service in the throne speech.
How about in 2009 when we discussed Aliant agreeing to sponsor such a service and then Nova Scotia Minister Jamie Muir wanting to see more money from proponents on the table so the province wouldn't have to go it alone on the operating costs?

Or, for you relative newcomers to the blawg (or those with shorter memories), how about in 2011 when the government finally agreed to provide $585,000 to establish the system, along with some additional operational funding?

Well, I just thought I would let you know that what some might have thought was actually accomplished back in 2011 has finally come to fruition ... as in .... IT'S HERE! *
Families now have a single point of access to more than 3,000 government, community and social programs provincewide, thanks to government investment in the new 211 information and referral system, which went live on February 11. 
.  .  . 
"With the launch of 211, we've reached a major milestone on the path to connecting Nova Scotians with the community and social services they need, as soon as they need them," said Chuck Hartlen, chair of the 211 Nova Scotia board and senior vice-president, customer experience, Bell Aliant. "Whether it's through 211's highly trained information specialists or the website, the service offers access to the most thorough database of community and socials services in Nova Scotia.
.  .  . 
211 is available in English, French and a variety of other languages, 24 hours a day, seven days a week, 365 days a year. Nova Scotians can access 211 by phone, email at info@ns.211.ca, or online at www.ns.211.ca.
You can read the whole thing here.

*Only 5 years later

Wednesday, December 19, 2012

Holiday Travel, Anyone?

While I do have a post brewing on some more human rights in education issues, given the time of year and the fact that I have a few other irons in the fire at the moment, I'm hoping you will forgive my tardiness. And, for now, see fit to accept this collection of potentially useful links for traveling this holiday season (or any other time, for that matter).

But first, some background on the Canadian Transportation Agency.
The Canadian Transportation Agency is an independent administrative body of the Government of Canada. It performs two key functions within the federal transportation system:
  • As a quasi-judicial tribunal, the Agency, informally and through formal adjudication, resolves a range of commercial and consumer transportation-related disputes, including accessibility issues for persons with disabilities. It operates like a court when adjudicating disputes.
  • As an economic regulator, the Agency makes determinations and issues authorities, licences and permits to transportation carriers under federal jurisdiction.
Part of the Agency's mandate includes dispute resolution (resolving complaints about federal transportation services, rates, fees and charges) and accessibility (ensuring Canada's national transportation system is accessible to all persons, particularly those with disabilities).

And, by the by, the CTA is also the Agency responsible for the historic One Person, One Fare” decision, in which the the right of  individuals with disabilities to have access to a second seat when traveling by air in Canada without having to pay a second fare for an attendant or other use, to accommodate their disability was recognized.

So now that you are sufficiently versed in the "who", let me share with you the "what". For your viewing pleasure, I offer the following three documents from the CTA:

Carriage of Mobility Aids On Board Planes, Trains and Ferries
This document sets out the standards, regulations, policies and procedures concerning the carriage of mobility aids in air, rail and ferry travel. It also provides some helpful tips for those traveling with mobility aids, as well as the procedure to be followed in resolving any problems/issues.

Take Charge of Your Travel: A Guide for Persons with Disabilities
This guide helps to anticipate the questions and prepare for the challenges that can arise when traveling. Starting with suggestions on making reservations, the document goes on to look at potential issues around the terminal, getting on board and your arrival at the other end (including mobility aids, medical clearances and service animals). There are some handy reminders and advice about what to do when things don't turn out as you expected, as well as a section with useful information sources and an index to help with quick searches. A reservation checklist is also included.

Accessible Transportation Complaints: A Resource Tool for Persons with Disabilities
As the title suggests, this document deals with the procedures involved in resolving accessible transportation complaints.

I haven't personally reviewed the documents at any great length or had any reason to use them yet (although I hope to change that soon - meaning I hope our family will be doing some travel by air this summer) but I hope you find them useful, either now or in the future.

H/T to the Arch Disability Law Centre and their great newsletters